Today is the funeral of my dear friend Charly Shore, one of our ambassadors.
If possible, please consider donating to Charly's GoFundMe for hypermobility and Ehlers-Danlos syndromes. Here is his go fund me link, thinking of family and friends today <3
Instead of flowers we are asking for donations to be made to a charity which supports those with Ehlers Danlos Syndrome, please see the following justgiving page: https://www.justgiving.com/page/charlys
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